The P in PANS/PANDAS stands for pediatric, and that single word shapes how patients get treated long after childhood. Meet Kirk, Emily and Lily from the National PANS/PANDAS Youth Alliance. They talk with us about what it's like to live with a condition most doctors still associate only with small children. Each of them were diagnosed as children, but they had different journeys and different experiences, which shows how vastly different each individual's experience with PANS or PANDAS truly is.

Kirk, Emily and Lily talk about how differently PANS/PANDAS presents from person to person, how tick-borne infections play a role, and how relapse can arrive years after a treatment that seemed to work. 

They also talk about the National PANS/PANDAS Youth Alliance, how they advocate for themselves and other people living with PANS/PANDAS and what they're pushing for legislatively. 

RESOURCES:
Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts

National PANDAS/PANS Youth Alliance https://www.nationalpandasyouthalliance.org/home 

NPYA Advocacy Guidebook https://www.nationalpandasyouthalliance.org/store/p/how-to-advocate-a-youth-survivors-guide-to-panspandas-advocacy 

Donate To NPYA https://givebutter.com/Qz6f5s 

NPYA on Instagram https://www.instagram.com/pandasyouthalliance/ 

Emily on Instagram https://www.instagram.com/chronicallyem.pans/ 

Claimable https://www.getclaimable.com/ 

PANDAS Michiana https://pandasmichiana.com/ 

PANDAS Physician Network https://www.pandasppn.org/ 

PANDAS Network https://pandasnetwork.org/understanding-pandas/ 

Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae 

PANDAS PARENTS Facebook Group https://www.facebook.com/groups/461708653853619

ASPIRE PANS PANDAS Advocacy, Community & Support Aspire

Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions

Mind Global Council https://www.mindglobalcouncil.com/

OCD Family Podcast https://www.ocdfamilypodcast.com/

Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/ 

Parenting Resources:

Dr. Ross Greene https://drrossgreene.com/ 

Dr. Becky Kennedy https://www.goodinside.com/about/ 

Dr. Dan Siegel https://drdansiegel.com/ 

Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/ 

The P in PANS/PANDAS stands for pediatric, and that single word shapes how patients get treated long after childhood. Meet Kirk, Emily and Lily from the National PANS/PANDAS Youth Alliance. They talk with us about what it's like to live with a condition most doctors still associate only with small children. Each of them were diagnosed as children, but they had different journeys and different experiences, which shows how vastly different each individual's experience with PANS or PANDAS truly is.
Kirk, Emily and Lily talk about how differently PANS/PANDAS presents from person to person, how tick-borne infections play a role, and how relapse can arrive years after a treatment that seemed to work.&nbsp;
They also talk about the National PANS/PANDAS Youth Alliance, how they advocate for themselves and other people living with PANS/PANDAS and what they're pushing for legislatively.&nbsp;
RESOURCES: Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers &mdash; Available wherever you listen to podcasts
National PANDAS/PANS Youth Alliance <a href="https://www.nationalpandasyouthalliance.org/home">https://www.nationalpandasyouthalliance.org/home</a>&nbsp;
NPYA Advocacy Guidebook <a href="https://www.nationalpandasyouthalliance.org/store/p/how-to-advocate-a-youth-survivors-guide-to-panspandas-advocacy">https://www.nationalpandasyouthalliance.org/store/p/how-to-advocate-a-youth-survivors-guide-to-panspandas-advocacy</a>&nbsp;
Donate To NPYA&nbsp;<a href="https://givebutter.com/Qz6f5s">https://givebutter.com/Qz6f5s</a>&nbsp;
NPYA on Instagram <a href="https://www.instagram.com/pandasyouthalliance/">https://www.instagram.com/pandasyouthalliance/</a>&nbsp;
Emily on Instagram <a href="https://www.instagram.com/chronicallyem.pans/">https://www.instagram.com/chronicallyem.pans/</a>&nbsp;
Claimable <a href="https://www.getclaimable.com/">https://www.getclaimable.com/</a>&nbsp;
PANDAS Michiana<a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2fpandasmichiana.com%2f&amp;c=E,1,zc3GDyjXr-vdPgMBUXX2l3bdpimTgHntDDmCNrElzZT3IuwKstPR9MD061FpO7C5MB92Kitz0Ofp4B-Cu3PaVlZxcV_i0pEKQ1hi2692cCj3RGLp7S0,&amp;typo=1">&nbsp;https://pandasmichiana.com/</a>&nbsp;
PANDAS Physician Network<a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2fwww.pandasppn.org%2f&amp;c=E,1,nsheMF-ZLyNfeCaEVqJ8w1EbmKvUKdzaJBlkcCATXXhn1RR7VzLqiB-1AW54IN3R5ThQAxNKsJZzeoPvyrNKbz5MuyVmH1kxh5lv-wA5yS3_8A,,&amp;typo=1">&nbsp;https://www.pandasppn.org/</a>&nbsp;
PANDAS Network<a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2fpandasnetwork.org%2funderstanding-pandas%2f&amp;c=E,1,oSRcOxHIeOczxNnwyEwwPsz1pezNuxPJqpUPiFBd54voMEq9LMXjCgdcVJIisUWjPQPqWNJfKhGWi2XHGL4ZmZyGB4f22A41FGq9pAE2NWnc&amp;typo=1">&nbsp;https://pandasnetwork.org/understanding-pandas/</a>&nbsp;
Angela Henry, LCSW <a href="https://angelahenrylcsw.com/services/pandas-pans-ae">https://angelahenrylcsw.com/services/pandas-pans-ae</a>&nbsp;
PANDAS PARENTS Facebook Group <a href="https://www.facebook.com/groups/461708653853619">https://www.facebook.com/groups/461708653853619</a>
ASPIRE <a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2faspire.care%2f&amp;c=E,1,JctdDsly7jEemiEI4eHkwsS38NEDK_5AfMf9GLGRiJ4uUR61hWffsF133U_aI-eJROFh3PEQhDSpTUaL4kCf_kjyRbGhp3uCH5Je7UVH0Y77LHlzqG71WO_EUpo,&amp;typo=1">PANS PANDAS Advocacy, Community &amp; Support Aspire</a>
Neuroimmune Foundation <a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2fneuroimmune.org%2f&amp;c=E,1,mNTMw8l4LkpxnJz4O_rajIeYPOY7MvW-P8XHdGqh8BKsYCFg9ZuQs6ehjylbvsG7h5c1XjPTljXbM2Xb3Zf_s9YX1VweL-Hoyp4Z203FHhNSBdHmaSaAt2WQbNw,&amp;typo=1">Neuroimmune Foundation | Inflammatory Brain Conditions</a>
Mind Global Council&nbsp;<a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2fwww.mindglobalcouncil.com%2f&amp;c=E,1,Lwk8_anxtG66heZOxzQuYZDgH3QjAQJsuvX86jNrlDTgefVaTKyFYw_9Gm0x06eEosqgKIc5VSijRQMFjEpfaBvhptfInfPHUa7EIKCeIZDDv2w1fFsxauI,&amp;typo=1">https://www.mindglobalcouncil.com/</a>
OCD Family Podcast<a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2fwww.ocdfamilypodcast.com%2f&amp;c=E,1,2ELpdJUDsiHm8ErbupVYFsCgz6pPqFKhiL1zxvlZR1lfxntav0ChXXeR_odXnbZQFs0d9jpyHfffvBKdDHyufmYPdk8pIHtIvNJ_pangcGQ,&amp;typo=1">&nbsp;https://www.ocdfamilypodcast.com/</a>
Hornets and Hippos Workbook:<a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2fmargaretjessoppsyd.com%2fhornets-and-hippos%2f&amp;c=E,1,50iUUS-2-wkhfhPAAoe2AmQ4d7_sMTFwbLl3JS5_YQNrj-bISePqPD6KHjF-qwVRrE_6zelRR5N5u1MT_7p11UfoIrSGieTNNJFN0QE1XI7l0wrn&amp;typo=1">&nbsp;https://margaretjessoppsyd.com/hornets-and-hippos/</a>&nbsp;
Parenting Resources:
Dr. Ross Greene<a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2fdrrossgreene.com%2f&amp;c=E,1,tMtE3h8P3utEznCHXLypiTXMBbuMlUihQWP357ew54WG8qfPM3dw1ktJP7IgHdYoSOh6cWKN1xjIDD0Loau8MQlcJb3QFbH0OOn4-2G-i1mp9igM7W-HPQ,,&amp;typo=1">&nbsp;https://drrossgreene.com/</a>&nbsp;
Dr. Becky Kennedy<a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2fwww.goodinside.com%2fabout%2f&amp;c=E,1,HE69LaTrRrJcaUoxf1rLbJLdKMXKS7bK5DFql5vk5yhoD0ILzjRPrmqDq9gO5YeM8iwKc8AAhPDagMzCikkZtTzYAvh0g9n-NYWPKFCY&amp;typo=1">&nbsp;https://www.goodinside.com/about/</a>&nbsp;
Dr. Dan Siegel<a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2fdrdansiegel.com%2f&amp;c=E,1,M3Mk7Pn6Z8p4tl3lIC2CjWbSp-gC4O_eSsCKFj-qbonbl8QhfjSX7vmChYjULwrDzuMC731yEYz0s1lHquDvFki_LVkKdwQRwxc8rLrneiJZK4C1hY560Q,,&amp;typo=1">&nbsp;https://drdansiegel.com/</a>&nbsp;
Brene Brown (professor and researcher of shame, vulnerability, courage and empathy)<a href="https://linkprotect.cudasvc.com/url?a=https%3a%2f%2fbrenebrown.com%2f&amp;c=E,1,eEJAbm1TjnlhFLej380GzNo66QTcMZ0cv5rrri3j_0aN1QxoXMSzGdYG4k-rZPfHo7DJF1xykEnAW-JOTxEV5gIlh50P1B47lvMEC_MM&amp;typo=1">&nbsp;https://brenebrown.com/</a>&nbsp;

When infections trigger autoimmune responses that attack a child's brain, families face an invisible storm—and often struggle to find doctors who understand how to help. Flying Through Fog brings clarity to PANS/PANDAS through real family stories, expert medical insights, and practical guidance.

Each episode features conversations with parents sharing their diagnostic journeys, medical professionals who specialize in these neuroimmune conditions, and advocates fighting for insurance coverage and better treatment access. Whether you're seeking answers for sudden behavioral changes in your child, looking for treatment options, or navigating school accommodations, this podcast offers hope, community, and education.

Your hosts:
Krystal Vivian – News/Talk 95.3 Michiana's News Channel
Lindsey Forsyth – mom of two kids with PANS/PANDAS
Angela Henry – LCSW, founder of Center for Collaborative Healing

Because when you're flying through fog, you don't have to fly alone.

Are you in the middle of the fog? Check out our sister podcast, Surviving The Flares, available now on your favorite podcast app.

Flying Through Fog is produced by Tommie Lee and published by News/Talk 95.3 Michiana's News Channel, a member of the Podcasts by Federated Media network.

When infections trigger autoimmune responses that attack a child's brain, families face an invisible storm&mdash;and often struggle to find doctors who understand how to help. Flying Through Fog brings clarity to PANS/PANDAS through real family stories, expert medical insights, and practical guidance.
Each episode features conversations with parents sharing their diagnostic journeys, medical professionals who specialize in these neuroimmune conditions, and advocates fighting for insurance coverage and better treatment access. Whether you're seeking answers for sudden behavioral changes in your child, looking for treatment options, or navigating school accommodations, this podcast offers hope, community, and education.
Your hosts:
<ul>
<li>Krystal Vivian &ndash; News/Talk 95.3 Michiana's News Channel</li>
<li>Lindsey Forsyth &ndash; mom of two kids with PANS/PANDAS</li>
<li>Angela Henry &ndash; LCSW, founder of Center for Collaborative Healing</li>
</ul>
Because when you're flying through fog, you don't have to fly alone.
Are you in the middle of the fog? Check out our sister podcast, Surviving The Flares, available now on your favorite podcast app.
Flying Through Fog is produced by Tommie Lee and published by News/Talk 95.3 Michiana's News Channel, a member of the Podcasts by Federated Media network.