Endpoints Shorts: Dr. Nadia Sethi on Cytokinetics’ Reldesemtiv Clinical Trial
Welcome to the latest episode of Endpoints Shorts, presented by the ALS Therapy Development Institute. In these bite-size podcasts, we’ll be tackling important scientific concepts for people interested in ALS research, current clinical trials, and news from around the ALS space – all in 15 minute…
Brooke Eby: Spreading ALS Awareness Through TikTok
Normally, you’d expect the subject matter of the videos you see while scrolling through TikTok to be light – funny skits, cute animals, dances, maybe a recipe or two. However, when one of Brooke Eby’s videos comes into your feed, you’ll notice it’s a little different from your average clip. Her Tik…
Endpoints Shorts: Dr. Nadia Sethi on Biogen's Tofersen Trial for Presymptomatic Carriers
Welcome to the latest episode of Endpoints Shorts. In these bite-size podcasts, we’ll be tackling important scientific concepts for people interested in ALS research, current clinical trials, and news from around the ALS space – all in 15 minutes or less. Our guide throughout this series will be …
Copper Complexes: Dr. Fernando Vieira on ALS TDI's Promising Potential ALS Treatment
ALS TDI’s primary mission is to discover treatments for everyone with ALS. Every day, our scientists are testing drugs to find the next compound with the potential to make it to clinical trials and beyond. Currently, one of our most promising leads is a group of molecules called copper complexes. …
Endpoints Shorts: Dr. Nadia Sethi on Ionis' FUS ASO Trial
Today we have the first installment of a new series we’re calling Endpoints Shorts. In these bite-size episodes, we’ll be tackling important scientific concepts for people interested in ALS research, current clinical trials, and news from around the ALS space – all in 15 minutes or less. Our guid…
Google’s Project Relate: Using Machine Learning to Help People with ALS
Project Relate is an app for Android phones and tablets that aims to use the power of voice recognition technology to help people with dysarthria, or difficulty speaking, in their day-to-day lives. The app is a product of Project Euphonia – a program founded by Google and Harvard researchers in col…
Dr. Silvia Pozzi on the State of Antibody Therapies for ALS
Antibodies are an essential part of our bodies’ defenses against diseases. They are specialized proteins that attack and kill foreign invaders like infectious bacteria and viruses. Antibodies are normally naturally produced by our immune system in response to an infection. However, in recent years…
Ajay Sampat: A Young Neurologist Discusses Life After ALS Diagnosis
ALS can happen to anyone. Although many outside of the ALS community often think of it as a disease that affects older people, onset can occur at any age, in any person, for reasons that are not understood. Take, for example, Ajay Sampat. He’s 36 years old, he has a wife and two young children, an…
Prime C: NeuroSense on their ALS Treatment
Celecoxib is a non-steroidal anti-inflammatory drug, or NSAID. Ciprofloxacin is an antibiotic that is used to treat a number of bacterial infections. The former has been trialed unsuccessfully in ALS. However, according to preclinical evidence and a phase 1 trial conducted by Neurosense, a biotech …
Ric Starry and Kevin Porter: 20 Years of the Tri-State Trek
20 years. More than 5000 miles, give or take. Thousands of riders. Countless hugs, tears, and cheers from the side of the road. And, if everything goes according to plan, $10 million raised for research to end ALS. The Tri-State Trek has built quite a legacy over the past two decades, and there is…