Dr. Fayron Epps joins hosts Ron Aaron and Carol Zernial to talk about building up capacity within black churches to address dementia-related disparities on this edition of Caregiver SOS.

Dr. Fayron Epps joins hosts Ron Aaron and Carol Zernial to talk about building up capacity within black churches to address dementia-related disparities on this edition of Caregiver SOS.

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Caregiver SOS

Hosts: Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Hosts: Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Building Up Capacity Within Black Churches to Address Dementia-Related Disparities with Dr. Fayron Epps

What happens when an aging parent or loved one flatly refuses medical care, assistance, or safety modifications? In this episode of Caregiver S.O.S. On Air, hosts Ron Aaron and Carol Zernial are joined by clinical psychologist, family therapist, and author Dr. Barry Jacobs to tackle one of the most stressful and common dilemmas family caregivers face. Together, they explore why older adults resist help, how to move away from disempowering "role reversals," and what strategies caregivers can use to foster cooperative, respectful partnerships.

Main Topics Covered


The Root of Resistance: Why older adults push back against assistance—fearing a loss of control, autonomy, and identity, or viewing help as a slippery slope toward total dependency.


The Myth of the "Role Reversal": Why treating an aging parent like a child ("I'm the parent now") is disrespectful, counterproductive, and damages trust.


Strategic Communication & Timing: The importance of starting conversations early—long before a crisis occurs—and building a foundation of mutual trust.


Navigating Cognitive Decline: How to manage safety concerns when a loved one has cognitive impairments or dementia that prevents them from seeing risks clearly.


Leveraging Third-Party Messengers: Utilizing care managers, other family members, or peers to deliver suggestions when an adult child's message is met with automatic denial.

Key Takeaways & Practical Tips


Avoid Ultimatums: Forcing solutions or "pulling the rug out" (such as surprising a parent with an abrupt move to a facility) strips them of dignity and triggers fierce emotional pushback.


View Care as a Negotiation: Caregiving decisions should be collaborative negotiations that honor the parent’s preferences, personal history, and agency.


Start Conversations Early: Proactively discuss future living arrangements and preferences (e.g., downsizing or home modifications) before a fall or medical emergency forces a reactionary change.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.


Expect Adaptation: Caregivers often anticipate the worst-case scenario, but older adults can be surprisingly flexible and resilient when introduced to new living situations with gentleness and respect.


Resource Spotlight: Dr. Barry Jacobs highlights strategies and advice found in his co-authored book, The AARP Caregiver Answer Book.

What happens when an aging parent or loved one flatly refuses medical care, assistance, or safety modifications? In this episode of Caregiver S.O.S. On Air, hosts Ron Aaron and Carol Zernial are joined by clinical psychologist, family therapist, and author Dr. Barry Jacobs to tackle one of the most stressful and common dilemmas family caregivers face. Together, they explore why older adults resist help, how to move away from disempowering "role reversals," and what strategies caregivers can use to foster cooperative, respectful partnerships.
Main Topics Covered
<ul dir="ltr" data-path-to-node="6">
<li>
The Root of Resistance: Why older adults push back against assistance&mdash;fearing a loss of control, autonomy, and identity, or viewing help as a slippery slope toward total dependency.
</li>
<li>
The Myth of the "Role Reversal": Why treating an aging parent like a child ("I'm the parent now") is disrespectful, counterproductive, and damages trust.
</li>
<li>
Strategic Communication &amp; Timing: The importance of starting conversations early&mdash;long before a crisis occurs&mdash;and building a foundation of mutual trust.
</li>
<li>
Navigating Cognitive Decline: How to manage safety concerns when a loved one has cognitive impairments or dementia that prevents them from seeing risks clearly.
</li>
<li>
Leveraging Third-Party Messengers: Utilizing care managers, other family members, or peers to deliver suggestions when an adult child's message is met with automatic denial.
</li>
</ul>
Key Takeaways &amp; Practical Tips
<ul dir="ltr" data-path-to-node="9">
<li>
Avoid Ultimatums: Forcing solutions or "pulling the rug out" (such as surprising a parent with an abrupt move to a facility) strips them of dignity and triggers fierce emotional pushback.
</li>
<li>
View Care as a Negotiation: Caregiving decisions should be collaborative negotiations that honor the parent&rsquo;s preferences, personal history, and agency.
</li>
<li>
Start Conversations Early: Proactively discuss future living arrangements and preferences (e.g., downsizing or home modifications) before a fall or medical emergency forces a reactionary change.
</li>
</ul>
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.
<ul dir="ltr" data-path-to-node="9">
<li>
Expect Adaptation: Caregivers often anticipate the worst-case scenario, but older adults can be surprisingly flexible and resilient when introduced to new living situations with gentleness and respect.
</li>
<li>
Resource Spotlight: Dr. Barry Jacobs highlights strategies and advice found in his co-authored book, The AARP Caregiver Answer Book.
</li>
</ul>

When Mom or Dad Says "No": How to Navigate Refusing Care | Dr. Jacobs

In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial are joined by entrepreneur, author, and advocate Mike Weinberger. Drawing from his personal experience as the primary caregiver for his wife, Nora—who was diagnosed with early-onset Alzheimer’s disease in 2019—Mike shares the profound emotional, legal, and practical lessons he learned along the way. Together, the hosts and Mike unpack the overwhelming reality of receiving a dementia diagnosis and examine the three critical decisions that Alzheimer's caregivers are rarely prepared to face, including managing legal arrangements upfront, prioritizing personal self-care, and finding the right community resources and care services.

Key Takeaways


The Reality of Post-Diagnosis Isolation: Getting a diagnosis often leaves families with little direction or immediate support systems compared to other major illnesses, frequently plunging caregivers into isolation.


Decision 1: Secure Legal and Financial Matters Early: Caregivers must consult an elder law attorney immediately following a diagnosis. Handling things like guardianship and property structuring early ensures families retain control before a loved one loses legal competency.


Decision 2: Prioritize Caregiver Self-Care and Respite: Caregiving is a 24/7 burden that can easily lead to severe isolation and burnout. Caregivers must learn to accept help—such as utilizing respite care—because preserving one's own well-being is vital to sustaining care for someone else.


Decision 3: Bridge the Support Chasm: Finding the right community resources, facilities, and specialized services (such as hospice care) requires proactive research, which Mike managed by waking up early to navigate the gap between community support and caregiver needs.


A New Tool for 24/7 Guidance: To help other families avoid the trial-and-error he faced, Mike created CARA (Caregiver Advisory and Resource Assistant), a free, secure, 24/7 AI-powered companion designed by caregivers for caregivers, available at caregivercompanion.ai.

About Mike

Mike Weinberger is an American entrepreneur, strategist, advocate, and author who specializes in Alzheimer's disease caregiver support and resources. Prior to his focus on Alzheimer's care, Weinberger accumulated more than 25 years of experience as a business strategist and growth builder.

Rather than being a clinical medical doctor or researcher, Weinberger's expertise comes from his deeply personal journey as a primary caregiver for his wife, Nora, who was diagnosed with early-onset Alzheimer's disease in 2019.

Following his experiences navigating the difficulties of memory care, Weinberger dedicated his career to building frameworks and platforms that assist families facing similar challenges. He is the co-founder of CaregiverCompanion.ai, an AI-powered assistant designed to give families instant access to reliable caregiving guidance. He co-founded CARA (Caregiver Advisor & Resource Assistant), an organizational resource aimed at helping companies support employees who balance professional duties with family caregiving obligations.

He authored the compassionate guide “My Wife Has Alzheimer's – Now What?: A Caregiver's Guide to Actionable Next Steps and Lower Stress”. The book is designed as a practical, "kitchen-table conversation" to help spouses manage the emotional toll, logistics, and daily routines of dementia care.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial are joined by entrepreneur, author, and advocate Mike Weinberger. Drawing from his personal experience as the primary caregiver for his wife, Nora&mdash;who was diagnosed with early-onset Alzheimer&rsquo;s disease in 2019&mdash;Mike shares the profound emotional, legal, and practical lessons he learned along the way. Together, the hosts and Mike unpack the overwhelming reality of receiving a dementia diagnosis and examine the three critical decisions that Alzheimer's caregivers are rarely prepared to face, including managing legal arrangements upfront, prioritizing personal self-care, and finding the right community resources and care services.
Key Takeaways
<ul data-path-to-node="5">
<li>
The Reality of Post-Diagnosis Isolation: Getting a diagnosis often leaves families with little direction or immediate support systems compared to other major illnesses, frequently plunging caregivers into isolation.
</li>
<li>
Decision 1: Secure Legal and Financial Matters Early: Caregivers must consult an elder law attorney immediately following a diagnosis. Handling things like guardianship and property structuring early ensures families retain control before a loved one loses legal competency.
</li>
<li>
Decision 2: Prioritize Caregiver Self-Care and Respite: Caregiving is a 24/7 burden that can easily lead to severe isolation and burnout. Caregivers must learn to accept help&mdash;such as utilizing respite care&mdash;because preserving one's own well-being is vital to sustaining care for someone else.
</li>
<li>
Decision 3: Bridge the Support Chasm: Finding the right community resources, facilities, and specialized services (such as hospice care) requires proactive research, which Mike managed by waking up early to navigate the gap between community support and caregiver needs.
</li>
<li>
A New Tool for 24/7 Guidance: To help other families avoid the trial-and-error he faced, Mike created CARA (Caregiver Advisory and Resource Assistant), a free, secure, 24/7 AI-powered companion designed by caregivers for caregivers, available at caregivercompanion.ai.
</li>
</ul>
About Mike
Mike Weinberger is an American entrepreneur, strategist, advocate, and author who specializes in Alzheimer's disease caregiver support and resources. Prior to his focus on Alzheimer's care, Weinberger accumulated more than 25 years of experience as a business strategist and growth builder.
Rather than being a clinical medical doctor or researcher, Weinberger's expertise comes from his deeply personal journey as a primary caregiver for his wife, Nora, who was diagnosed with early-onset Alzheimer's disease in 2019.
Following his experiences navigating the difficulties of memory care, Weinberger dedicated his career to building frameworks and platforms that assist families facing similar challenges. He is the co-founder of CaregiverCompanion.ai, an AI-powered assistant designed to give families instant access to reliable caregiving guidance. He co-founded CARA (Caregiver Advisor &amp; Resource Assistant), an organizational resource aimed at helping companies support employees who balance professional duties with family caregiving obligations.
He authored the compassionate guide &ldquo;My Wife Has Alzheimer's &ndash; Now What?: A Caregiver's Guide to Actionable Next Steps and Lower Stress&rdquo;. The book is designed as a practical, "kitchen-table conversation" to help spouses manage the emotional toll, logistics, and daily routines of dementia care.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Navigating Alzheimer's: The First Three Steps Every Caregiver Needs to Know | Mike Weinberger

In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial are joined by sociologist, author, and podcast creator Dr. Mindy Fried. Drawing from her personal experience caring for her late father, Manny Fried, Dr. Fried shares profound insights on navigating the final chapters of aging, the complexities of family care dynamics, and the broader systemic challenges facing the caregiving workforce.

Key Topics Discussed


A Daughter’s Caregiving Journey: Dr. Fried shares the emotional and powerful experience of caring for her 97-year-old father—a former labor organizer and playwright—as he transitioned into an assisted living community after a fall.


Bridging Generations and Personalities: The discussion explores the hurdles of helping an independent, intellectually minded senior adapt to institutional living, and how a local newspaper feature helped shift his perspective on his community.


Systemic Labor Issues in Care: Leveraging her background in sociology and social work, Dr. Fried examines the direct impact of low wages and labor shortages on direct care workers, advocating for greater investment in essential caregivers and nonprofit care facilities.


The Shape of Care: Dr. Fried introduces her own caregiving podcast, The Shape of Care, discussing its origins, the emotional trajectories of spousal caregivers, and the importance of breaking caregiver isolation.


Policy and Support Systems: The conversation touches on critical structural gaps—including common misconceptions about Medicare covering long-term care—and highlights vital resources like support groups, state-funded models, and the PACE program.

Key Takeaways


Grieving as You Go: Caring for a loved one through advanced health declines is a profound process of ongoing emotional adaptation and being fully present in their final chapter.


The Power of Community & Connection: Caregiving is often an isolated experience; creating and joining support networks is essential for sharing options, understanding what to expect, and finding mutual encouragement.


Elevating Care Workers: The quality of institutional care is inextricably linked to how direct care workers are compensated and supported, making workforce advocacy a crucial priority for the future of aging.

About Dr. Fried

Mindy Fried, M.S.W., Ph.D. is a sociologist with 30 years of experience conducting research, teaching, and conducting policy analysis on organizational and workplace issues. As Co-Principal of Arbor Consulting Partners, she worked collaboratively with organizations for over 25 years, to help them build their capacity and strengthen their programs and policies. Mindy produced an award-winning podcast about caregiving called The Shape of Care, which won a Public Engagement award from the global organization, The Carework Network, a group of care researchers and advocates. She is also the Co-Producer and Host of Next Chapters, a podcast about growing older for women, created in collaboration with Our Bodies Ourselves, a global resource on health and sexuality. As Direction of Hoopla Productions, a small nonprofit organization that produced arts, Mindy produced the film, Open Your Heart:  Immigrant Stories from Boston and Beyond, which was selected and screened at film festivals and in numerous local screenings. Mindy has published several books, including Caring for Red: A Daughter’s Memoir (Vanderbilt University Press, July, 2016), and Taking Time: Parental Leave Policy and Corporate Culture (Temple University Press, 1998).

Today, Dr. Fried brings together her professional expertise and her personal experience as a daughter and caregiver to help us better understand the realities of aging, caregiving, family, and finding support.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial are joined by sociologist, author, and podcast creator Dr. Mindy Fried. Drawing from her personal experience caring for her late father, Manny Fried, Dr. Fried shares profound insights on navigating the final chapters of aging, the complexities of family care dynamics, and the broader systemic challenges facing the caregiving workforce.
Key Topics Discussed
<ul data-path-to-node="5">
<li>
A Daughter&rsquo;s Caregiving Journey: Dr. Fried shares the emotional and powerful experience of caring for her 97-year-old father&mdash;a former labor organizer and playwright&mdash;as he transitioned into an assisted living community after a fall.
</li>
<li>
Bridging Generations and Personalities: The discussion explores the hurdles of helping an independent, intellectually minded senior adapt to institutional living, and how a local newspaper feature helped shift his perspective on his community.
</li>
<li>
Systemic Labor Issues in Care: Leveraging her background in sociology and social work, Dr. Fried examines the direct impact of low wages and labor shortages on direct care workers, advocating for greater investment in essential caregivers and nonprofit care facilities.
</li>
<li>
The Shape of Care: Dr. Fried introduces her own caregiving podcast, The Shape of Care, discussing its origins, the emotional trajectories of spousal caregivers, and the importance of breaking caregiver isolation.
</li>
<li>
Policy and Support Systems: The conversation touches on critical structural gaps&mdash;including common misconceptions about Medicare covering long-term care&mdash;and highlights vital resources like support groups, state-funded models, and the PACE program.
</li>
</ul>
Key Takeaways
<ul data-path-to-node="7">
<li>
Grieving as You Go: Caring for a loved one through advanced health declines is a profound process of ongoing emotional adaptation and being fully present in their final chapter.
</li>
<li>
The Power of Community &amp; Connection: Caregiving is often an isolated experience; creating and joining support networks is essential for sharing options, understanding what to expect, and finding mutual encouragement.
</li>
<li>
Elevating Care Workers: The quality of institutional care is inextricably linked to how direct care workers are compensated and supported, making workforce advocacy a crucial priority for the future of aging.
</li>
</ul>
About Dr. Fried
Mindy Fried, M.S.W., Ph.D. is a sociologist with 30 years of experience conducting research, teaching, and conducting policy analysis on organizational and workplace issues. As Co-Principal of <a href="http://www.arborcp.com/about-us/www.arborcp.com">Arbor Consulting Partners</a>, she worked collaboratively with organizations for over 25 years, to help them build their capacity and strengthen their programs and policies. Mindy produced an award-winning podcast about caregiving called <a href="https://theshapeofcare.org/">The Shape of Care</a>, which won a Public Engagement award from the global organization, The Carework Network, a group of care researchers and advocates. She is also the Co-Producer and Host of <a href="https://ourbodiesourselves.org/next-chapters">Next Chapters</a>, a podcast about growing older for women, created in collaboration with Our Bodies Ourselves, a global resource on health and sexuality. As Direction of <a href="https://www.hooplaproductions.org/">Hoopla Productions</a>, a small nonprofit organization that produced arts, Mindy produced the film, <a href="https://www.hooplaproductions.org/open-your-heart-film/">Open Your Heart:&nbsp; Immigrant Stories from Boston and Beyond</a>, which was selected and screened at film festivals and in numerous local screenings. Mindy has published several books, including <a href="http://www.vanderbilt.edu/university-press/book/9780826521163">Caring for Red: A Daughter&rsquo;s Memoir </a>(Vanderbilt University Press, July, 2016), and <a href="http://www.amazon.com/Taking-Time-Women-Political-Economy/dp/1566396476">Taking Time: Parental Leave Policy and Corporate Culture</a> (Temple University Press, 1998).
Today, Dr. Fried brings together her professional expertise and her personal experience as a daughter and caregiver to help us better understand the realities of aging, caregiving, family, and finding support.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Building Up Capacity Within Black Churches to Address Dementia-Related Disparities with Dr. Fayron Epps

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