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It’s estimated that there are as many as 7,000 different known rare diseases in the world. In the The U.S., it’s defined as "any disease or condition that affects fewer than 200,000 people.

Today, you’ll meet two of them, and their mothers.

GUESTS:
Erin Rupolo is the Mid-Atlantic Regional ChairPerson for the Williams Syndrome Association and she's a Special Education Paraeducator in Kensington, MD
Sophie Rupolo is 12 years old and has Williams Syndrome
Allyson Buck of Greenwich, Connecticut is Sam's mom and the co-founder of the VWM Families Foundation
Sam Buck is 10 years old and has Vanishing White Matter Disease

Photo credit: Sigurd Decroos - freeimages.com

It’s estimated that there are as many as 7,000 different known rare diseases in the world. In the The U.S., it’s defined as "any disease or condition that affects fewer than 200,000 people.
Today, you’ll meet two of them, and their mothers.
GUESTS:
<ul>
<li>Erin Rupolo is the Mid-Atlantic Regional ChairPerson for the Williams Syndrome Association and she's a Special Education Paraeducator in Kensington, MD</li>
<li>Sophie Rupolo is 12 years old and has Williams Syndrome</li>
<li>Allyson Buck of Greenwich, Connecticut is Sam's mom and the co-founder of the <a href="http://vwmff.org">VWM Families Foundation</a></li>
<li>Sam Buck is 10 years old and has Vanishing White Matter Disease</li>
</ul>
Photo credit: Sigurd Decroos - freeimages.com

Audacious with Chion Wolf will highlight the uncommon experiences of everyday people – asking the hardest, most uncomfortable questions. With curiosity and compassion, Connecticut Public producer and host Chion Wolf digs deeper, encouraging listeners to ask hard questions in their own lives.

Find out more at https://www.ctpublic.org/audacious

Audacious with Chion Wolf will highlight the uncommon experiences of everyday people – asking the hardest, most uncomfortable questions. With curiosity and compassion, Connecticut Public producer and host Chion Wolf digs deeper, encouraging listeners to ask hard questions in their own lives.
Find out more at https://www.ctpublic.org/audacious

Audacious with Chion Wolf

Audacious with Chion Wolf will highlight the uncommon experiences of everyday people – asking the hardest, most uncomfortable questions. With curiosity and compassion, Connecticut Public producer and host Chion Wolf digs deeper, encouraging listeners to ask hard questions in their own lives.

Find out more at ctpublic.org/audacious

Audacious with Chion Wolf will highlight the uncommon experiences of everyday people – asking the hardest, most uncomfortable questions. With curiosity and compassion, Connecticut Public producer and host Chion Wolf digs deeper, encouraging listeners to ask hard questions in their own lives.
Find out more at <a href="https://www.ctpublic.org/show/audacious-with-chion-wolf/about">ctpublic.org/audacious</a>

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