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Marfan syndrome is a rare genetic condition that affects the body’s connective tissue, sometimes in ways that are life-threatening, and often life-changing. Meet three people whose stories reveal the risks, resilience, and even humor of living with Marfan. 

Dr. John Elefteriades, one of the world’s leading aortic surgeons, explains how new AI tools could revolutionize diagnosis. British engineer Tal Golesworthy recalls how he designed the device that saved his own heart. And comedian Liam Nelson shares how his height, surgeries, and community shaped both his life and his stand-up.

For more information, visit the Marfan Foundation. 

Suggested episodes:
Why the world needs comedians with disabilities

 

GUESTS: 
Dr. John Elefteriades: Cardiothoracic surgeon, researcher, and educator. He is a Professor of Surgery at Yale School of Medicine, and a founding director (Emeritus) of the Aortic Institute at Yale-New Haven
Tal Golesworthy: British engineer with Marfan syndrome, who persuaded surgeons to implant a device that he developed in his heart in 2004. It's called the ExoVasc Personalised External Aortic Root Support, or PEARS
Liam Nelson: Atlanta, Georgia-based comedian and advocate who has Marfan syndrome

Marfan syndrome is a rare genetic condition that affects the body&rsquo;s connective tissue, sometimes in ways that are life-threatening, and often life-changing. Meet three people whose stories reveal the risks, resilience, and even humor of living with Marfan.&nbsp;
Dr. John Elefteriades, one of the world&rsquo;s leading aortic surgeons, explains how new AI tools could revolutionize diagnosis. British engineer Tal Golesworthy recalls how he designed the device that saved his own heart. And comedian Liam Nelson shares how his height, surgeries, and community shaped both his life and his stand-up.
For more information, visit <a href="https://marfan.org/">the Marfan Foundation</a>.&nbsp;
Suggested episodes:
<ul>
<li aria-level="1"><a href="https://www.ctpublic.org/show/audacious-with-chion-wolf/2023-02-02/why-the-world-needs-comedians-with-disabilities">Why the world needs comedians with disabilities</a></li>
</ul>
&nbsp;
GUESTS:&nbsp;
<ul>
<li aria-level="1"><a href="https://medicine.yale.edu/profile/john-elefteriades/">Dr. John Elefteriades</a>: Cardiothoracic surgeon, researcher, and educator. He is a Professor of Surgery at Yale School of Medicine, and a founding director (Emeritus) of the Aortic Institute at Yale-New Haven</li>
<li aria-level="1"><a href="https://exstent.com/story/tal-golesworthy/">Tal Golesworthy</a>: British engineer with Marfan syndrome, who persuaded surgeons to implant a device that he developed in his heart in 2004. It's called the ExoVasc Personalised External Aortic Root Support, or PEARS</li>
<li aria-level="1"><a href="https://www.instagram.com/liamjnelson">Liam Nelson</a>: Atlanta, Georgia-based comedian and advocate who has Marfan syndrome</li>
</ul>

Audacious with Chion Wolf spotlights the stories of people whose experiences, professions, or conditions defy convention or are often misunderstood. Guided by deep curiosity and genuine compassion, the team behind Audacious creates space for the kinds of stories that rarely get told - and the kinds of questions we're often afraid to ask. From those speaking publicly for the very first time to voices already known around the world, every guest is met with care, and every story is honored as both deeply personal and profoundly human.

For more: ctpublic.org/audacious

Audacious with Chion Wolf spotlights the stories of people whose experiences, professions, or conditions defy convention or are often misunderstood. Guided by deep curiosity and genuine compassion, the team behind Audacious creates space for the kinds of stories that rarely get told - and the kinds of questions we're often afraid to ask. From those speaking publicly for the very first time to voices already known around the world, every guest is met with care, and every story is honored as both deeply personal and profoundly human.
For more: <a href="https://www.ctpublic.org/show/audacious-with-chion-wolf">ctpublic.org/audacious</a>

Audacious with Chion Wolf spotlights the stories of people whose experiences, professions, or conditions defy convention or are often misunderstood. 

Audacious with Chion Wolf

Audacious with Chion Wolf spotlights the stories of people whose experiences, professions, or conditions defy convention or are often misunderstood.

Guided by deep curiosity and genuine compassion, the team behind Audacious creates space for the kinds of stories that rarely get told - and the kinds of questions we’re often afraid to ask. From those speaking publicly for the very first time to voices already known around the world, every guest is met with care, and every story is honored as both deeply personal and profoundly human.

Listen at ctpublic.org/audacious

Support is provided by a generous contribution from Suzanne Hopgood, in Memory of Frank Lord.

Audacious with Chion Wolf spotlights the stories of people whose experiences, professions, or conditions defy convention or are often misunderstood.
Guided by deep curiosity and genuine compassion, the team behind Audacious creates space for the kinds of stories that rarely get told - and the kinds of questions we&rsquo;re often afraid to ask. From those speaking publicly for the very first time to voices already known around the world, every guest is met with care, and every story is honored as both deeply personal and profoundly human.
Listen at <a href="http://ctpublic.org/audacious">ctpublic.org/audacious</a>
Support is provided by a generous contribution from Suzanne Hopgood, in Memory of Frank Lord.

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