On this episode of Soundbites of the Annual Meeting, we talked to Kimberly Haugstad, CEO of RareRising and a longtime rare disease advocate who is also the parent of a child with severe hemophilia.

In her conversation with ASGCT's Communications Committee Chair, Lynnea Olivarez, Kimberly discusses:
why patients, as the "lived experience experts" are so important to rare disease communications


advice for scientists who would like to engage more directly with patient communities
what's giving her hope right now

Listen and subscribe to the ASGCT Podcast Network so you don't miss any episodes!

On this episode of Soundbites of the Annual Meeting, we talked to Kimberly Haugstad, CEO of RareRising and a longtime rare disease advocate who is also the parent of a child with severe hemophilia.
In her conversation with ASGCT's Communications Committee Chair, Lynnea Olivarez, Kimberly discusses:
<ul>
<li>why patients, as the "lived experience experts" are so important to rare disease communications</li>
<li>
advice for scientists who would like to engage more directly with patient communities
</li>
<li>what's giving her hope right now</li>
</ul>
Listen and subscribe to the <a href="https://www.asgct.org/publications/asgct-podcast-network" data-cke-saved-href="https://www.asgct.org/publications/asgct-podcast-network">ASGCT Podcast Network</a> so you don't miss any episodes!

The American Society of Gene & Cell Therapy is the premier membership organization for professionals working in cell and gene therapy. On this network, we're sharing exciting stories from our members and the greater scientific community.

The American Society of Gene &amp; Cell Therapy is the premier membership organization for professionals working in cell and gene therapy. On this network, we're sharing exciting stories from our members and the greater scientific community.

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