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Ethical decisions at the end of life

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Jane Sullivan OAM’s career has spanned paid and unpaid work, community services and the health system, social work and psychology, church organisations and the public sector.  As she looks back over her career, it is her conversations with one group of people that stay with her.  These were the people who wanted to make the decision that no-one wants to have to make.

Jane Sullivan’s OAM Citation

https://www.gg.gov.au/sites/default/files/2023-01/20230126%20-%20Media%20notes%20-%20OAM%20%28S-Z%29.pdf

 

Jane’s resource for parents of children with life limiting conditions:

Caring decisions: A Handbook for parents facing end-of-life decisions for their child,

The Royal Children’s Hospital, Melbourne

https://www.rch.org.au/uploadedFiles/Main/Content/caringdecisions/130890%20Caring%20Decisions%20book_v1.pdf

 

Articles:

After an end-of-life decision: Parents’ reflections on living with an end-of-life decision for their child

Jane E Sullivan Lynn H Gillam, Paul T Monagle

Journal of Paediatrics and Child Health / Vol 56, Issue 7, pp 1060-1065

https://onlinelibrary.wiley.com/doi/abs/10.1111/jpc.14816

 

Ethics at the end of life: who should make decisions about treatment limitation for young children with life threatening or life limiting conditions?

Journal of Paediatrics and Child Health / Vol 57, Issue 9, pp 594-598

https://onlinelibrary.wiley.com/doi/full/10.1111/j.1440-1754.2011.02177.x

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