Eight year old Louella lives with an ultra-rare skeletal condition, of which she is believed to be the only known sufferer. As her mobility declines, her family faces the heartbreaking reality that their current home can no longer meet her needs. In an emotional chat, Luke Grant speaks with her Mum, Brooke Jackson, about the challenges they face, the urgent need for an accessible home, and how the community can help support Louella’s journey toward independence, safety, and dignity.